Some Call It The ‘Suicide Disease’

Few things compare to constant electrical-like currents with burning hot and ice cold pain. That’s what Elizabeth Seickel, RN, likened Complex Regional Pain Syndrome (CRPS) to, in terms of pain level. “It’s physical torture, “said Seickel, “If I didn’t have this condition, I honestly don’t know how I [...]

By |2018-10-05T21:13:36+00:00September 4th, 2018|Comments Off on Some Call It The ‘Suicide Disease’

SSA Expands Fast-Tracking for Disability Benefits

Coping with a long-term disability can be challenging. It’s even more stressful for individuals waiting on a favorable decision about their Social Security disability claim. Now, imagine the reduced pressure that comes with getting faster results. On Monday, Aug. 20, the Social Security Administration (SSA) announced the addition [...]

By |2018-09-04T20:09:27+00:00August 30th, 2018|Comments Off on SSA Expands Fast-Tracking for Disability Benefits

A Life Worth Fighting For

By Samantha Smith, Public Relations Director/Newsletter Editor at G-PACT No one ever expects something like the ability to eat to be taken away from them. You never expect to go to a family function and have to watch everyone around you eat, while you quietly sit there trying [...]

By |2018-10-05T21:13:45+00:00August 27th, 2018|Comments Off on A Life Worth Fighting For

#BeBold4GP Highlights Gastroparesis Awareness Month

By Melissa Adams VanHouten, Gastroparesis Advocate  August is national Gastroparesis Awareness Month! We encourage medical professionals, patient groups, family and friends, and the general public to help educate others about this life-altering chronic illness and its potentially debilitating effects on patients and their loved ones. What is Gastroparesis? [...]

By |2018-08-27T15:33:08+00:00August 21st, 2018|Comments Off on #BeBold4GP Highlights Gastroparesis Awareness Month

Psoriatic Arthritis Doesn’t Stop Her

Melanie Lech was a senior in college when she attended a belly dancing class that left her significantly more sore than usual. It was the beginning of a painful journey through the medical maze known as psoriatic arthritis. She was only 21 years old. The Huntersville, North Carolina, native [...]

By |2018-09-05T14:49:29+00:00August 17th, 2018|Comments Off on Psoriatic Arthritis Doesn’t Stop Her

America’s Health Care Heroes: Celebrate National Health Center Week

By Dorian Wanzer, Manager of Grassroots Advocacy, Outreach & Communications, National Association of Community Health Centers Founded in 1971, the National Association of Community Health Centers (NACHC) is the national health care advocacy organization for America’s medically underserved and uninsured, as well as the community health centers that [...]

By |2018-08-17T18:58:42+00:00August 15th, 2018|Comments Off on America’s Health Care Heroes: Celebrate National Health Center Week

A Game Plan for Traumatic Brain Injury

Kelli Pokrifka is part of what she calls a “really cool community” of people living with traumatic brain injury (TBI). After fainting and hitting her head in 2013, Kelli experienced debilitating nausea and fatigue, sleeping up to 20 hours a day. She was mostly incoherent during her waking [...]

By |2018-08-09T16:16:53+00:00August 9th, 2018|Comments Off on A Game Plan for Traumatic Brain Injury

Now What? Find Your Inner Ninja

The first thing you may notice about Amy Rivera is her leg. It is larger than the rest of her body due to lymphedema, a painful swelling that happens when lymphatic fluid can’t circulate properly and builds up in soft tissues. “Your body releases toxins, but they have [...]

By |2018-08-09T16:16:44+00:00August 1st, 2018|Comments Off on Now What? Find Your Inner Ninja

Living a Good Life with Scleroderma

Amy Gietzen was 19 when her world changed forever. She was diagnosed with systemic scleroderma, a chronic connective tissue disease marked by tightening of the skin and joint pain.  Symptoms can range from very mild to life threatening. For Amy, who endures pain on a daily basis, they [...]

By |2018-08-01T18:46:31+00:00July 23rd, 2018|Comments Off on Living a Good Life with Scleroderma

Myositis-Facing the Unknown

In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people. It’s estimated that 50,000 to 75,000 Americans live with myositis─chronic muscle inflammation, accompanied by muscle weakness, and for some, skin rashes, pain and fatigue. Kate Boyle bravely put her face [...]

By |2018-08-01T18:47:15+00:00July 16th, 2018|Comments Off on Myositis-Facing the Unknown
Load More Posts
Call to Start Now!