All Things Disability 2018-08-12T17:28:23+00:00

All Things Disability

Guidance for life with a disability: stories and facts, insights and encouragement.

All Things Disability

Guidance for life with a disability: stories and facts, insights and encouragement.

Recommended

Some Call It The ‘Suicide Disease’

Few things compare to constant electrical-like currents with burning hot and ice cold pain. That’s what Elizabeth Seickel, RN, likened Complex Regional Pain Syndrome (CRPS) to, in terms of pain level.

“It’s physical torture, “said Seickel, “If I didn’t have this condition, I honestly don’t know how I could wrap my head around its severity. It’s hard to articulate.”

Diagnosed nearly 12 years ago, Seickel is a knowledgeable spokesperson in the CRPS community. She volunteers with […]

By | September 4th, 2018|Featured, Health|

Most Popular

SSA Expands Fast-Tracking for Disability Benefits

Coping with a long-term disability can be challenging. It’s even more stressful for individuals waiting on a favorable decision about their Social Security disability claim. Now, imagine the reduced pressure that comes with getting faster results.

On Monday, Aug. 20, the Social Security Administration (SSA) announced the addition of five conditions to the Compassionate Allowances (CAL) program. The new CAL listings are:

  • Fibrolamellar Cancer
  • Megacystis Microcolon Intestinal Hypoperistalsis Syndrome (MMIHS)
  • Megalencephaly Capillary Malformation Syndrome (MCAP)
  • […]

By | August 30th, 2018|Health, SSDI Claims|

#BeBold4GP Highlights Gastroparesis Awareness Month

By Melissa Adams VanHouten, Gastroparesis Advocate 

August is national Gastroparesis Awareness Month! We encourage medical professionals, patient groups, family and friends, and the general public to help educate others about this life-altering chronic illness and its potentially debilitating effects on patients and their loved ones.

What is Gastroparesis?

Gastroparesis, or “paralysis of the stomach,” is a gastrointestinal motility disorder in which the stomach muscles fail to contract and move […]

By | August 21st, 2018|Health|

Psoriatic Arthritis Doesn’t Stop Her

Melanie Lech was a senior in college when she attended a belly dancing class that left her significantly more sore than usual. It was the beginning of a painful journey through the medical maze known as psoriatic arthritis. She was only 21 years old.

The Huntersville, North Carolina, native said, “The next day it felt like my arm was falling off. It actually felt like my shoulder was sliding out of the joint. […]

By | August 17th, 2018|Health|

Now What? Find Your Inner Ninja

The first thing you may notice about Amy Rivera is her leg. It is larger than the rest of her body due to lymphedema, a painful swelling that happens when lymphatic fluid can’t circulate properly and builds up in soft tissues.

“Your body releases toxins, but they have nowhere to go,” Rivera explained. Although it is considered a rare disease, affecting about 3-5 million Americans, Rivera said the numbers are rising, with more cancer survivors […]

By | August 1st, 2018|Health|

Living a Good Life with Scleroderma

Amy Gietzen was 19 when her world changed forever. She was diagnosed with systemic scleroderma, a chronic connective tissue disease marked by tightening of the skin and joint pain.  Symptoms can range from very mild to life threatening. For Amy, who endures pain on a daily basis, they were life-changing.

“I had a plan on how my life was going to be,” said Gietzen. “You have to leave your old life behind and start a […]

By | July 23rd, 2018|Health|
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Recommended

Some Call It The ‘Suicide Disease’

Few things compare to constant electrical-like currents with burning hot and ice cold pain. That’s what Elizabeth Seickel, RN, likened Complex Regional Pain Syndrome (CRPS) to, in terms of pain level.

“It’s physical torture, “said Seickel, “If I didn’t have this condition, I honestly don’t know how I could wrap my head around its severity. It’s hard to articulate.”

Diagnosed nearly 12 years ago, Seickel is a knowledgeable spokesperson in the CRPS community. She volunteers with […]

By | September 4th, 2018|Featured, Health|

Most Popular

SSA Expands Fast-Tracking for Disability Benefits

Coping with a long-term disability can be challenging. It’s even more stressful for individuals waiting on a favorable decision about their Social Security disability claim. Now, imagine the reduced pressure that comes with getting faster results.

On Monday, Aug. 20, the Social Security Administration (SSA) announced the addition of five conditions to the Compassionate Allowances (CAL) program. The new CAL listings are:

  • Fibrolamellar Cancer
  • Megacystis Microcolon Intestinal Hypoperistalsis Syndrome (MMIHS)
  • Megalencephaly Capillary Malformation Syndrome (MCAP)
  • […]

By | August 30th, 2018|Health, SSDI Claims|

#BeBold4GP Highlights Gastroparesis Awareness Month

By Melissa Adams VanHouten, Gastroparesis Advocate 

August is national Gastroparesis Awareness Month! We encourage medical professionals, patient groups, family and friends, and the general public to help educate others about this life-altering chronic illness and its potentially debilitating effects on patients and their loved ones.

What is Gastroparesis?

Gastroparesis, or “paralysis of the stomach,” is a gastrointestinal motility disorder in which the stomach muscles fail to contract and move […]

By | August 21st, 2018|Health|

Psoriatic Arthritis Doesn’t Stop Her

Melanie Lech was a senior in college when she attended a belly dancing class that left her significantly more sore than usual. It was the beginning of a painful journey through the medical maze known as psoriatic arthritis. She was only 21 years old.

The Huntersville, North Carolina, native said, “The next day it felt like my arm was falling off. It actually felt like my shoulder was sliding out of the joint. […]

By | August 17th, 2018|Health|

Now What? Find Your Inner Ninja

The first thing you may notice about Amy Rivera is her leg. It is larger than the rest of her body due to lymphedema, a painful swelling that happens when lymphatic fluid can’t circulate properly and builds up in soft tissues.

“Your body releases toxins, but they have nowhere to go,” Rivera explained. Although it is considered a rare disease, affecting about 3-5 million Americans, Rivera said the numbers are rising, with more cancer survivors […]

By | August 1st, 2018|Health|

Living a Good Life with Scleroderma

Amy Gietzen was 19 when her world changed forever. She was diagnosed with systemic scleroderma, a chronic connective tissue disease marked by tightening of the skin and joint pain.  Symptoms can range from very mild to life threatening. For Amy, who endures pain on a daily basis, they were life-changing.

“I had a plan on how my life was going to be,” said Gietzen. “You have to leave your old life behind and start a […]

By | July 23rd, 2018|Health|
Load More Posts